Saturday, 1 July 2017

[Story] how I live my life being wheelchair bound because of my rare genetic disease

( I have wrote this before but never here, so I wanted to share it on here for anybody that it might help)

I was born with Spinal Muscular Atrophy type 2 and I'm 24 years old and I'll be lucky to make it to my thirties with the already shitty health issues I have now. I've almost died countless times and my health will only continue to get worse as time goes on. I'm wheelchair bound and have barely enough mobility to feed myself (even then it's still a struggle). My immune system is horrible leaving me vulnerable to illness that could easily kill me because I also have a weak respiratory system.

I learned to live with it and make the best of what I have. I was given one life to live and it might not be perfect, but fuck who's life is? I guess I could sit alone in a room crying to myself about life being cruel and unfair, but that won't do any good. I have to make my life whatever I want because I see people who have more means than I do complain about their lives and I'm here with a smile on my face and love in my heart. You have to love whatever it is you were given in your life no matter how small or insignificant it may seem. There are others who make do with less than me and they are happy, so why shouldn't I be? Life is too fucking long to be sad and worried about stuff you can't always control. So there's no reason why you shouldn't go out and make your life whatever you want it to be.



Submitted July 02, 2017 at 10:45AM by CharlesButtlet http://ift.tt/2sA4Shq

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